www.house.gov/shuster/content/press_room/2008/080215_Platts.pdf

In many instances, children experiencing rare or life threatening illnesses take part in medical research studies through the NIH to gain access to new and emerging medications and therapies. Very often, the medications used by NIH are experimental and have either not been approved by the Food and Drug Administration or have not been cleared to treat a specific illness. When children leave an NIH study, they are at risk of losing access to these life saving therapies because their private insurance won’t cover them.Shuster and Platt’s legislation seeks to close this gap in care by allowing children transitioning out of NIH medical studies to continue to receive medication through Medicaid if private insurance refuses to cover the treatment.

Go to Senator Spector's page to read about new opportunities for children and health at this site: specter.senate.gov/public/index.cfm?FuseAction=NewsRoom.NewsReleases&ContentRecord_id=a985d285-0138-3430-e1e9-5858275e01da

Visit Lori Todaro's site to learn more about her son's journey of a rare genetic disease, funding that she is generating from the profits of her book, and new federal government regulations that she is stimulating ideas for at www.ninoact.org.

We need Montana!!!